Location and Time Reformierte Kirche, Hinwil (Near Zürich) Tuesday, April 30, at 2pm Esbeth was a great person and a significant milestone for the early treatment of children with cerebral palsy. She and Mary Quinton introduced NDT-BOBATH method in Europe. Esbeth was a life time member of ICPS and a good friend of us all. The Funeral of Elsbeth took place in her native village Hinwil (Near Zürich) in the reformierte Kirche on Tuesday, April...
We have received the following email from our member in Zambia, Esther Mundia, we hope you will find it of interest. Dear Sir or Madam, My name is Esther Mundia. I am the Founder of Munu Ka Yumbwa Cerebral Palsy Association (MYCEPA), a Zambian charitable organization. “Munu Ka Yumbwa” loosely translated means “A Human Being Cannot be discarded” or “Every Person Has Value”. My son, Temba, is now 30 years old and has cerebral palsy...
Published online 9th June 2018. AIM To describe the impact austerity measures have had on families with disabled children across Europe and on professionals providing services for them. METHOD Cross-sectional surveys were disseminated via professional and family networks in 32 European countries for 3 months from December 2016. RESULTS Families (n=731), of whom 45% met UNICEF criteria for severe poverty, and professionals (n=959) responded...
Nothing about us without us August 2016 | Volume 58 | Issue 8 Anushka is 14 years old. She and her parents live a 3-hour drive from Kathmandu, in a village where their livelihood is the potato crop. Today her Outreach Worker from the Self-Help Group for Cerebral Palsy Nepal (SGCP) is coming with visiting professionals. They have been invited by SGCP to contribute their up-to-date knowledge in the hope of improving the daily lives and function...
For many years ICPS has had a member organisation in Nepal, the headquarters are based in Kathmandu. ICPS has worked closely with them taking a team to work with the children, the staff and parents. Following the recent devastating earthquakes in Nepal, we made contact with our member, Self-Help Group for Cerebral Palsy SGCP, and Co Reijnders of the Stichting ‘Holland Building Nepal’ who raises funds for the SGCP, to see what the news was...
After working in the corporate world for four years, I decided to quit and pursue my dream. My dream is to work in a Cerebral Palsy Society as I was born with Spastic Hemiplegia Cerebral Palsy. The condition has not stopped me in my life endeavours, instead, it has pushed me beyond my limits. I am a brown belt in Kung Fu, I have been a motivational speaker in numerous events, I work with a local charity school to raise funds for other disabled...
A Joelette is similar to a palanquin or litter, a portable chair carried on long poles with one supporting wheel. The Joelette creates the possibility for people with a motor disorder to explore nature, forests and the great outdoors. It gives opportunities for people with reduced mobility to plan their own path up hill and down dale without caring about the obstacles of nature. Joëlettes can be used simply for walks with family and friends....
I have just attended the 9th International Congress on Cerebral Palsy held in Bled Slovenia. I am grateful for the invitation, the chance to attend and participate. It is good to hear from so many professionals and parents as well, to know so much research work is being made, striving to find answers to improve the quality of life for our children. With these developments, I look forward to a bright future for them, hoping every affected child...
ICPS was honoured to be asked asked by the organisers of the 2014 EACD Conference held in Newcastle UK to host one of the pre-conference Forums. ICPS approached the Percy Hedley School Newcastle whose parents agreed to participate in the event. The parents themselves chose the three subjects to he discussed. Each session was introduced by a parent and a professional speaker and followed by a discussion. ICPS is grateful to the Percy Hedley...
Read this newsletter in French Dear Friends, We have all been moved by the success of the London Paralympic Games, the sportsmen’s zest for life and the spectators’ enthusiasm. However, Elisabeth Zucman, a great lady known for her accomplishments regarding the disabled, still describes the relationship between the able-bodied and the disabled as follows: “when an able-bodied person meets someone vulnerable, due to fear and ignorance, they...
