CP-ECA

Cerebral Palsy in the European Union Association

News

ISNEREM 2019, Toxin Academy MasterClass

Prof. Alberto Esquenazi Congress Chair, Prof. of Physical Medicine and Rehabilitation, Department Chair and Chief Medical Officer at MossRehab, Einstein Healthcare Network Philadelphie USA Dr. Serdar Koçer Congress Co-Chair, Chief of Rehabilitation Center Hôpital du Jura Switzerla Find out more www.toxinacademy.com www.isnerem.com

Funeral of Elsbeth Köng

Location and Time Reformierte Kirche, Hinwil (Near Zürich) Tuesday, April 30, at 2pm Esbeth was a great person and a significant milestone for the early treatment of children with cerebral palsy. She and Mary Quinton introduced NDT-BOBATH method in Europe. Esbeth was a life time member of ICPS and a good friend of us all. The Funeral of Elsbeth took place in her native village Hinwil (Near Zürich) in the reformierte Kirche on Tuesday, April...

News from Zambia, Esther Mundia

We have received the following email from our member in Zambia, Esther Mundia, we hope you will find it of interest. Dear Sir or Madam, My name is Esther Mundia. I am the Founder of Munu Ka Yumbwa Cerebral Palsy Association (MYCEPA), a Zambian charitable organization. “Munu Ka Yumbwa” loosely translated means “A Human Being Cannot be discarded” or “Every Person Has Value”. My son, Temba, is now 30 years old and has cerebral palsy...

Austerity and families with disabled children: a European survey

Published online 9th June 2018. AIM To describe the impact austerity measures have had on families with disabled children across Europe and on professionals providing services for them. METHOD Cross-sectional surveys were disseminated via professional and family networks in 32 European countries for 3 months from December 2016. RESULTS Families (n=731), of whom 45% met UNICEF criteria for severe poverty, and professionals (n=959) responded...

Invited editorial developmental medicine and child neurology

Nothing about us without us  August 2016 | Volume 58 | Issue 8 Anushka is 14 years old. She and her parents live a 3-hour drive from Kathmandu, in a village where their livelihood is the potato crop. Today her Outreach Worker from the Self-Help Group for Cerebral Palsy Nepal (SGCP) is coming with visiting professionals. They have been invited by SGCP to contribute their up-to-date knowledge in the hope of improving the daily lives and function...

Helping earthquake victims in Nepal, David’s story

For many years ICPS has had a member organisation in Nepal, the headquarters are based in Kathmandu. ICPS has worked closely with them taking a team to work with the children, the staff and parents. Following the recent devastating earthquakes in Nepal, we made contact with our member, Self-Help Group for Cerebral Palsy SGCP, and Co Reijnders of the Stichting ‘Holland Building Nepal’ who raises funds for the SGCP, to see what the news was...

A dream career with love, Shahedeh Dehghani

After working in the corporate world for four years, I decided to quit and pursue my dream. My dream is to work in a Cerebral Palsy Society as I was born with Spastic Hemiplegia Cerebral Palsy. The condition has not stopped me in my life endeavours, instead, it has pushed me beyond my limits. I am a brown belt in Kung Fu, I have been a motivational speaker in numerous events, I work with a local charity school to raise funds for other disabled...

What is a Joelette?

A Joelette is similar to a palanquin or litter, a portable chair carried on long poles with one supporting wheel. The Joelette creates the possibility for people with a motor disorder to explore nature, forests and the great outdoors. It gives opportunities for people with reduced mobility to plan their own path up hill and down dale without caring about the obstacles of nature. Joëlettes can be used simply for walks with family and friends....

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